Psychometric properties of the Hebrew KIDSCREEN 52, 27 and 10 items: a cross-sectional study of self and parents reports in youth with and without physical disabilities

Wallander, J. L., & Koot, H. M. (2016). Quality of life in children: A critical examination of concepts, approaches, issues, and future directions. Clinical Psychology Review. https://doi.org/10.1016/j.cpr.2015.11.007

Article  PubMed  Google Scholar 

Davis, E., Waters, E., Mackinnon, A., Reddihough, D., Graham, H. K., Mehmet-Radji, O., & Boyd, R. (2006). Paediatric quality of life instruments: A review of the impact of the conceptual framework on outcomes. Developmental Medicine and Child Neurology, 48, 311–318. https://doi.org/10.1017/S0012162206000673

Article  PubMed  Google Scholar 

Rosenbaum, P. L., Livingston, M. H., Palisano, R. J., Galuppi, B. E., & Russell, D. J. (2007). Quality of life and health-related quality of life of adolescents with cerebral palsy. Developmental Medicine and Child Neurology, 49, 516–521. https://doi.org/10.1111/j.1469-8749.2007.00516.x

Article  PubMed  Google Scholar 

Seid, M., Varni, J. W., & Jacobs, J. R. (2000). Pediatric health-related quality-of-life measurement technology: Intersections between science, managed care, and clinical care. Journal of Clinical Psychology Medical Settings, 7, 17–27.

Article  Google Scholar 

De Civita, M., Regier, D., Alamgir, A. H., Anis, A. H., FitzGerald, M. J., & Marra, C. A. (2005). Evaluating health-related quality-of-life studies in paediatric populations: Some conceptual, methodological and developmental considerations and recent applications. PharmacoEconomics. https://doi.org/10.2165/00019053-200523070-00003

Article  PubMed  Google Scholar 

Gaspar, T., Ribeiro, J. P., de Matos, M. G., Leal, I., & Ferreira, A. (2012). Health-related quality of life in children and adolescents: subjective well being. The Spanish Journal of Psychology, 15, 177–186. https://doi.org/10.5209/rev_sjop.2012.v15.n1.37306

Article  PubMed  Google Scholar 

Rosenbaum, P.; Paneth, N.; Leviton, A.; Goldstein, M.; Bax, M. A Report: The Definition and Classification of Cerebral Palsy April 2006. Dev Med Child Neurol 2007, 49.

Colver, A., Rapp, M., Eisemann, N., Ehlinger, V., Thyen, U., Dickinson, H. O., Parkes, J., Parkinson, K., Nystrand, M., Fauconnier, J., et al. (2015). Self-reported quality of life of adolescents with cerebral palsy: A cross-sectional and longitudinal analysis. The Lancet. https://doi.org/10.1016/S0140-6736(14)61229-0

Article  Google Scholar 

Parkinson, K., Gibson, L., Dickinson, H., & Colver, A. (2010). Pain in children with cerebral palsy: A cross-sectional multicentre european study. Acta Paediatrica, International Journal of Paediatrics,. https://doi.org/10.1111/j.1651-2227.2009.01626.x

Article  Google Scholar 

Arnaud, C., White-Koning, M., Michelsen, S. I., Parkes, J., Parkinson, K., Thyen, U., Beckung, E., Dickinson, H. O., Fauconnier, J., Marcelli, M., et al. (2008). Parent-reported quality of life of children with cerebral palsy in Europe. Pediatrics. https://doi.org/10.1542/peds.2007-0854

Article  PubMed  Google Scholar 

Dickinson, H. O., Parkinson, K. N., Ravens-Sieberer, U., Schirripa, G., Thyen, U., Arnaud, C., Beckung, E., Fauconnier, J., McManus, V., Michelsen, S. I., et al. (2007). Self-reported quality of life of 8–12-year-old children with cerebral palsy: A cross-sectional european study. Lancet. https://doi.org/10.1016/S0140-6736(07)61013-7

Article  PubMed  Google Scholar 

Pickard, A. S., & Knight, S. J. (2005). Proxy evaluation of health-related quality of life: A conceptual framework for understanding multiple proxy perspectives. Medical Care, 43, 493–499.

Article  PubMed  PubMed Central  Google Scholar 

Silberg, T., Brezner, A., Gal, G., Ahonniska-Assa, J., & Levav, M. (2016). The role of maternal distress in the report of behavioral and emotional problems among children with chronic disabilities. Israel Journal of Psychiatry, 53, 17.

PubMed  Google Scholar 

Sentenac, M. (2022). Health-related quality of life among children with disabilities: Is there a place for parent-proxy reports? A commentary on the “The effects of basic photography education on quality of life, self-esteem, life satisfaction and moods in children with diplegic cerebral palsy: A randomized controlled study.” Physical and Occupational Therapy in Pediatrics, 42, 12–14. https://doi.org/10.1080/01942638.2022.1999157

Article  PubMed  Google Scholar 

Sentenac, M., Rapp, M., Ehlinger, V., Colver, A., Thyen, U., & Arnaud, C. (2021). Disparity of child/parent-reported quality of life in cerebral palsy persists into adolescence. Developmental Medicine and Child Neurology. https://doi.org/10.1111/dmcn.14638

Article  PubMed  Google Scholar 

Eiser, C., & Morse, R. (2001). A Review of Measures of Quality of Life for Children with Chronic Illness. Archives of Disease in Childhood. https://doi.org/10.1136/adc.84.3.205

Article  PubMed  PubMed Central  Google Scholar 

Theunissen, N. C. M., Vogels, T. G. C., Koopman, H. M., Verrips, G. H. W., Zwinderman, K. A. H., Verloove-Vanhorick, S. P., & Wit, J. M. (1998). The proxy problem: Child report versus parent report in health-related quality of life research. Quality of Life Research. https://doi.org/10.1023/A:1008801802877

Article  PubMed  Google Scholar 

Sattoe, J. N. T., van Staa, A. L., & Moll, H. A. (2012). The proxy problem anatomized: Child-parent disagreement in health related quality of life reports of chronically Ill adolescents. Health and Quality Life Outcomes. https://doi.org/10.1186/1477-7525-10-10

Article  Google Scholar 

Jozefiak, T., Larsson, B., Wichstrøm, L., Mattejat, F., & Ravens-Sieberer, U. (2008). Quality of life as reported by school children and their parents: A cross-sectional survey. Health and Quality Life Outcomes. https://doi.org/10.1186/1477-7525-6-34

Article  Google Scholar 

Sattoe, J. N. T., van Staa, A. L., & Moll, H. A. (2012). The proxy problem anatomized: Child-parent disagreement in health related quality of life reports of chronically Ill adolescents. Health and Quality of Life Outcomes, 10, 6–9. https://doi.org/10.1186/1477-7525-10-10

Article  Google Scholar 

Rajmil, L., López, A. R., López-Aguilà, S., & Alonso, J. (2013). Parent-child agreement on health-related quality of life (HRQOL): A longitudinal study. Health and Quality of Life Outcomes, 11, 1–10. https://doi.org/10.1186/1477-7525-11-101

Article  Google Scholar 

Bagheri, Z., Jafari, P., Tashakor, E., Kouhpayeh, A., & Riazi, H. (2014). Assessing whether measurement invariance of the KIDSCREEN-27 across child-parent dyad depends on the child gender: A multiple group confirmatory factor analysis. Global Journal of Health Science, 6, 142–153. https://doi.org/10.5539/gjhs.v6n5p142

Article  PubMed  PubMed Central  Google Scholar 

Robitail, S., Siméoni, M. C., Ravens-Sieberer, U., Bruil, J., & Auquier, P. (2007). Children proxies’ quality-of-life agreement depended on the country using the European KIDSCREEN-52 questionnaire. Journal of Clinical Epidemiology, 60(469), e1-469.e13. https://doi.org/10.1016/j.jclinepi.2006.09.007

Article  Google Scholar 

Lundberg, V., Lindh, V., Eriksson, C., Petersen, S., & Eurenius, E. (2018). Correction: Health-related quality of life in girls and boys with juvenile idiopathic arthritis: Self- and parental reports in a cross-sectional study. Pediatric Rheumatology. https://doi.org/10.1186/s12969-018-0269-2

Article  PubMed  PubMed Central  Google Scholar 

Bianchini, J. A. A., Da Silva, D. F., Nardo, C. C. S., Carolino, I. D. R., Hernandes, F., & Nardo Junior, N. (2013). Parent-proxy perception of overweight adolescents’ health-related quality of life is different according to adolescent gender and age and parent gender. European Journal of Pediatrics. https://doi.org/10.1007/s00431-013-2050-3

Article  PubMed  Google Scholar 

Eiser, C., & Morse, R. (2001). The measurement of quality of life in children: Past and future perspectives. Journal of Developmental and Behavioral Pediatrics. https://doi.org/10.1097/00004703-200108000-00007

Article  PubMed  Google Scholar 

Hatzir, L., Tuval-Mashiach, R., Pinhas-Hamiel, O., & Silberg, T. (2023). Good Health Practices and Well-Being among Adolescents with Type-1 Diabetes: A Cross-Sectional Study Examining the Role of Satisfaction and Frustration of Basic Psychological Needs. International Journal of Environmental Research and Public Health. https://doi.org/10.3390/ijerph20031688

Article  PubMed  PubMed Central  Google Scholar 

Bahrampour, M., Jones, R., Dalziel, K., Devlin, N., & Mulhern, B. (2024). Comparing generic paediatric health-related quality-of-life instruments: A dimensionality assessment using factor analysis. PharmacoEconomics, 42, 81–94. https://doi.org/10.1007/s40273-024-01382-y

Article  PubMed  PubMed Central  Google Scholar 

Ravens-Sieberer, U., Herdman, M., Devine, J., Otto, C., Bullinger, M., Rose, M., & Klasen, F. (2014). The European KIDSCREEN approach to measure quality of life and well-being in children: Development, current application, and future advances. Quality of Life Research. https://doi.org/10.1007/s11136-013-0428-3

Article  PubMed  Google Scholar 

Ravens-Sieberer, U., Erhart, M., Wille, N., Wetzel, R., Nickel, J., & Bullinger, M. (2006). Generic health-related quality-of-life assessment in children and adolescents: Methodological considerations. PharmacoEconomics, 24, 1199–1220.

Article  PubMed  Google Scholar 

Befus, E.-G., Helseth, S., Mølland, E., Westergren, T., Fegran, L., & Haraldstad, K. (2023). Use of KIDSCREEN health-related quality of life instruments in the general population of children and adolescents: A scoping review. Health and Quality of Life Outcomes, 21, 6. https://doi.org/10.1186/s12955-023-02088-z

Article  PubMed  PubMed Central  Google Scholar 

Kennedy, I. (2022). Samp

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