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Associations between financial toxicity, health-related quality of life, and well-being in Indonesian patients with breast cancer
Associations between financial toxicity, health-related quality of life, and well-being in Indonesian patients with breast cancer
Financial toxicity (FT) is the impairment of financial well-being experienced by patients with cancer, categorized into su...
Placebo response variability on health-related quality of life outcomes in irritable bowel syndrome: an arm-based network meta-analysis
Placebo response variability on health-related quality of life outcomes in irritable bowel syndrome: an arm-based network meta-analysis
The impact of placebo response on health outcomes in various diseases, including IBS, is significant. To better understand...
Associations between 24-h movement behaviors and health-related quality of life(HRQoL) in preschool children: a cross-sectional study
Associations between 24-h movement behaviors and health-related quality of life(HRQoL) in preschool children: a cross-sectional study
To investigate the association between preschool children's 24-h movement behaviors and health-related quality of life...
Proxy reporting in health: a scoping review of instructions, perspectives, and reporting experiences
Proxy reporting in health: a scoping review of instructions, perspectives, and reporting experiences
Informal carers (‘proxies’), who typically provide unpaid care and have a personal relationship with the care ...
Feasibility of implementing a codesigned patient reported outcome measures (PROMs) collection system for older adults in acute and sub-acute hospital settings
Feasibility of implementing a codesigned patient reported outcome measures (PROMs) collection system for older adults in acute and sub-acute hospital settings
To test the feasibility of a co-designed PROMs collection system for hospitalised older adults. A mixed-methods feasibilit...
Impact of a minimal monitoring HCV treatment approach on Health-Related Quality of Life
Impact of a minimal monitoring HCV treatment approach on Health-Related Quality of Life
Direct-acting antivirals (DAA) are highly effective for the management of HCV disease. This study aims to evaluate changes...
Valuing health‐related quality of life: an EQ‐5D‐5L value set for Morocco
Valuing health‐related quality of life: an EQ‐5D‐5L value set for Morocco
There is a growing interest in Health Technology Assessment (HTA) in Morocco. A national EQ-5D-5L value set would allow fo...
Enabling six- to ten-year-old children to self-report their wellbeing and quality of life: development and psychometric investigation of an age-adapted and video-assisted version of the KIDSCREEN-27
Enabling six- to ten-year-old children to self-report their wellbeing and quality of life: development and psychometric investigation of an age-adapted and video-assisted version of the KIDSCREEN-27
Identifying the underlying factors that contribute to poor wellbeing and developing strategies for early intervention are ...
Understanding the health-related quality of life impacts of caring for children and adolescents with rare progressive life-limiting conditions: key challenges and future research priorities
Understanding the health-related quality of life impacts of caring for children and adolescents with rare progressive life-limiting conditions: key challenges and future research priorities
The inclusion of health-related quality of life (HRQoL) impacts on informal carers in health technology assessments (HTAs)...
Health-related social needs mitigate ethnoracial inequities in patient-reported mental health
Health-related social needs mitigate ethnoracial inequities in patient-reported mental health
To characterize the relationship between ethnoracial identity, health-related social needs (HRSNs), and mental health (MH)...
Young children (6–7 years) can meaningfully participate in cognitive interviews assessing comprehensibility in health-related quality of life domains: a qualitative study
Young children (6–7 years) can meaningfully participate in cognitive interviews assessing comprehensibility in health-related quality of life domains: a qualitative study
Establishing the comprehensibility of patient reported outcome measures (PROMs) in quality of life research is es...
Development of self-report measures of physical, mental, and emotional fatigability: the michigan fatigability index (MIFI)
Development of self-report measures of physical, mental, and emotional fatigability: the michigan fatigability index (MIFI)
To develop item banks and static short-forms for a patient reported outcome measure of perceived physical, mental, and emo...
Effect of impairment on health-related quality of life in people with multiple sclerosis: association of functional systems and EQ-5D-5L index values in a cross-sectional study
Effect of impairment on health-related quality of life in people with multiple sclerosis: association of functional systems and EQ-5D-5L index values in a cross-sectional study
Multiple sclerosis (MS) results in physical and cognitive impairments that negatively affect health-related quality of lif...
A patient first perspective of sleep disturbance across therapeutic areas: a systematic literature review of qualitative studies
A patient first perspective of sleep disturbance across therapeutic areas: a systematic literature review of qualitative studies
Sleep, a vital pillar of health, impacts daily functioning and overall quality of life. Despite extensive research on slee...
Psychometric properties of the Hebrew KIDSCREEN 52, 27 and 10 items: a cross-sectional study of self and parents reports in youth with and without physical disabilities
Psychometric properties of the Hebrew KIDSCREEN 52, 27 and 10 items: a cross-sectional study of self and parents reports in youth with and without physical disabilities
The KIDSCREEN health related quality of life (HRQoL) measures have not been validated in Hebrew and are under-studied in y...
Patient experience of alpha-1 antitrypsin deficiency-associated liver disease: a qualitative study
Patient experience of alpha-1 antitrypsin deficiency-associated liver disease: a qualitative study
To elicit the signs and/or symptoms, and impacts on daily living experienced by patients with alpha-1 antitrypsin deficien...
Bidirectional association between frailty and quality of life within English longitudinal study of aging
Bidirectional association between frailty and quality of life within English longitudinal study of aging
The relationship between quality of life (QoL) and frailty has previously been investigated cross-sectionally and longitud...
Impact of arterial stiffness on health-related quality of life in older Thai adults with treated HIV infection: a multicenter cohort study
Impact of arterial stiffness on health-related quality of life in older Thai adults with treated HIV infection: a multicenter cohort study
Despite advancements in antiretroviral therapy (ART) that extend life expectancy, older adults with HIV (OAHIV) face eleva...
Pharmacist-facilitated Patient Reported Outcome Measure (PROM) monitoring: developing an EHR SmartForm© to monitor side effects of oral oncolytics during routine telehealth encounters
Pharmacist-facilitated Patient Reported Outcome Measure (PROM) monitoring: developing an EHR SmartForm© to monitor side effects of oral oncolytics during routine telehealth encounters
Patient reported outcome measures (PROMs) are increasingly used in oncology care, but pharmacists providing direct patient...
Association of adverse events and quality of life in patients with unresectable hepatocellular carcinoma
Association of adverse events and quality of life in patients with unresectable hepatocellular carcinoma
Hepatocellular carcinoma (HCC) is the third-leading cause of cancer-related deaths globally. Patients are often diagnosed ...
Impact of rehabilitation with dental implants on the quality of life of patients undergoing maxillofacial reconstruction: a systematic review
Impact of rehabilitation with dental implants on the quality of life of patients undergoing maxillofacial reconstruction: a systematic review
Maxillofacial reconstruction with dental implants in microvascular tissue flaps aims to improve mastication. However, the ...
One-year trajectories of physical and mental health-related quality of life, fatigue and dyspnoea in COVID-19 survivors
One-year trajectories of physical and mental health-related quality of life, fatigue and dyspnoea in COVID-19 survivors
A substantial number of people experience a persisting impact on health-related quality of life (HRQoL) after COVID-19. Th...
Health-related quality of life in 205 children with arthrogryposis multiplex congenita
Health-related quality of life in 205 children with arthrogryposis multiplex congenita
Arthrogryposis multiplex congenita (AMC) describes a heterogeneous group of rare congenital conditions. Health-related qua...
Development of the celiac disease symptom diary version 2.1© (CDSD 2.1©) patient-reported outcome measure
Development of the celiac disease symptom diary version 2.1© (CDSD 2.1©) patient-reported outcome measure
For patients with celiac disease (CeD), the only current management option is adherence to a strict gluten-free diet (GFD)...
The humanistic burden of immunoglobulin A nephropathy on patients and care-partners in the United States
The humanistic burden of immunoglobulin A nephropathy on patients and care-partners in the United States
This cross-sectional survey study quantified the humanistic burden of immunoglobulin A nephropathy (IgAN), in terms of phy...
Testing the psychometric characteristics of EQ-5D-5L and respiratory bolt-ons using a sample of the Australian population
Testing the psychometric characteristics of EQ-5D-5L and respiratory bolt-ons using a sample of the Australian population
The EQ-5D has been used to assess health related quality of life (HRQoL) in respiratory conditions. However, the core desc...
Quality of life of inflammatory bowel diseases patients in france with EQ-5D-5 L: the QALY-MICI study
Quality of life of inflammatory bowel diseases patients in france with EQ-5D-5 L: the QALY-MICI study
This study aimed to document utility values and the Visual Analog Scale (VAS) with the 5-level version of the EQ-5D questi...
Uncovering the story within the story: a scoping review of response shift in qualitative research
Uncovering the story within the story: a scoping review of response shift in qualitative research
The role of qualitative research in response-shift research has not been well characterized. This scoping review summarize...
Psychometric properties of self-reported measures of psychological birth trauma in puerperae: A COSMIN systematic review
Psychometric properties of self-reported measures of psychological birth trauma in puerperae: A COSMIN systematic review
To identify and evaluate the psychometric properties of available patient-reported outcome measures (PROMs) of psychologic...
Trajectory of health-related quality of life during and after hospitalisation due to worsening of heart failure
Trajectory of health-related quality of life during and after hospitalisation due to worsening of heart failure
This study aimed to examine the trajectory in health-related quality of life (HRQoL) during and after hospitalisation for ...
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