The Impact of Coping and Psychological Flexibility on Young Adult Caregivers’ Mental Health and Quality of Life

AARP, National Alliance for Caregiving. Caregiving in the United States 2020. Washington, DC: AARP. Available at https://www.aarp.org/pri/topics/ltss/family-caregiving/caregiving-in-the-united-states/, 2020. Accessed 16 March, 2025.

National Research Council (US) Committee on the Role of Human Factors in Home Health Care. The Role of Human Factors in Home Health Care: Workshop Summary. Washington, DC: U.S. Department of Health and Human Services, 2010. Available at https://www.ncbi.nlm.nih.gov/books/NBK210056/. Accessed 16 March, 2025.

Boersma P, Black LI, Ward BW. Prevalence of Multiple Chronic Conditions Among US Adults, 2018. Preventing Chronic Disease. 2020;17(E106). https://doi.org/10.5888/pcd17.200130

Darabos K, Faust H. Assessing health, psychological distress and financial well-being in informal young adult caregivers compared to matched young adult non-caregivers. Psychology, Health, & Medicine. 2023;28(8):2249-2260. https://doi.org/10.1080/13548506.2023.2195671

Article  Google Scholar 

Greene J, Cohen D, Siskowski C, et al. The Relationship Between Family Caregiving and the Mental Health of Emerging Young Adult Caregivers. Journal of Behavioral Health Services & Research. 2017;44(4):551-563. https://doi.org/10.1007/s11414-016-9526-7

Article  Google Scholar 

Arnett JJ (Eds). Chapter 4, Socialization in emerging adulthood: From the family to the wider world, from socialization to self-socialization. In: JE Grusec, PD Hastings (Eds). Handbook of socialization: Theory and research, Second Edition. New York: The Guilford Press, 2015, pp. 85–108.

Dixit D, Spreadbury J, Orlando R, et al. Quality of Life Assessments in Individuals With Young-Onset Dementia and Their Caregivers. Journal of Geriatric Psychiatry and Neurology. 2021;34(5):426-433. https://doi.org/10.1177/0891988720933348

Article  PubMed  Google Scholar 

King T, Singh A, Disney G. Associations between young informal caring and mental health: a prospective observational study using augmented inverse probability weighting. Lancet Regional Health Western Pacific. 2021;15:100257. https://doi.org/10.1016/j.lanwpc.2021.100257

Article  PubMed  PubMed Central  Google Scholar 

Haugland BSM, Hysing M, Sivertsen B. The Burden of Care: A National Survey on the Prevalence, Demographic Characteristics and Health Problems Among Young Adult Carers Attending Higher Education in Norway. Frontiers in Psychology. 2019;10:2859. https://doi.org/10.3389/fpsyg.2019.02859

Article  PubMed  Google Scholar 

Fleitas Alfonzo L, Singh A, Disney G, et al. Mental health of young informal carers: a systematic review. Social Psychiatry and Psychiatric Epidemiology. 2022;57(12):2345-2358. https://doi.org/10.1007/s00127-022-02333-8

Article  PubMed  PubMed Central  Google Scholar 

Tan KP, Ang JK, Koh EBY, et al. Relationship of Psychological Flexibility and Mindfulness to Caregiver Burden, and Depressive and Anxiety Symptoms in Caregivers of People with Dementia. International Journal of Environmental Research and Public Health. 2023; 20(5). https://doi.org/10.3390/ijerph20054232

Hawken T, Turner-Cobb J, Barnett J. Coping and adjustment in caregivers: A systematic review. Health Psychology Open. 2018;5(2):2055102918810659. https://doi.org/10.1177/2055102918810659

Article  PubMed  PubMed Central  Google Scholar 

Pakenham KI, Bursnall S, Chiu J, et al. The psychosocial impact of caregiving on young people who have a parent with an illness or disability: Comparisons between young caregivers and noncaregivers. Rehabilitation Psychology. 2006;51(2):113-126. https://doi.org/10.1037/0090-5550.51.2.113

Article  Google Scholar 

Amonoo HL, Johnson PC, Nelson AM, et al. Coping in caregivers of patients with hematologic malignancies undergoing hematopoietic stem cell transplantation. Blood Advances. 2023;7(7):1108-1116. https://doi.org/10.1182/bloodadvances.2022008281

Article  PubMed  Google Scholar 

Kim JH, Knight BG. Effects of caregiver status, coping styles, and social support on the physical health of Korean American caregivers. The Gerontologist. 2008;48(3):287-99. https://doi.org/10.1093/geront/48.3.287

Article  PubMed  Google Scholar 

Kim JH, Knight BG, Longmire CV. The role of familism in stress and coping processes among African American and White dementia caregivers: effects on mental and physical health. Health Psychology. 2007;26(5):564–76. https://doi.org/10.1037/0278-6133.26.5.564

Kashdan TB, Rottenberg J. Psychological flexibility as a fundamental aspect of health. Clinical Psychology Review. Nov 2010;30(7):865-78. https://doi.org/10.1016/j.cpr.2010.03.001

Article  PubMed  PubMed Central  Google Scholar 

Contreras M, Mioshi E, Kishita N. Factors predicting quality of life in family carers of people with dementia: The role of psychological inflexibility. Journal of Contextual Behavioral Science. 2021;22:7-12. https://doi.org/10.1016/j.jcbs.2021.08.003

Article  Google Scholar 

Jansen JE, Haahr UH, Lyse HG, et al. Psychological Flexibility as a Buffer against Caregiver Distress in Families with Psychosis. Frontiers in Psychology. 2017;8:1625. https://doi.org/10.3389/fpsyg.2017.01625

Article  PubMed  PubMed Central  Google Scholar 

Lappalainen P, Keinonen K, Pakkala I, et al. The role of thought suppression and psychological inflexibility in older family caregivers’ psychological symptoms and quality of life. Journal of Contextual Behavioral Science. 2021;20:129-136. https://doi.org/10.1016/j.jcbs.2021.04.005

Article  Google Scholar 

Avsec A, Eisenbeck N, Carreno DF, et al. Coping styles mediate the association between psychological inflexibility and psychological functioning during the COVID-19 pandemic: A crucial role of meaning-centered coping. Journal of Contextual Behavioral Science. 2022;26:201-209. https://doi.org/10.1016/j.jcbs.2022.10.001

Article  PubMed  PubMed Central  Google Scholar 

Tindle R, Hemi A, Moustafa AA. Social support, psychological flexibility and coping mediate the association between COVID-19 related stress exposure and psychological distress. Scientific Reports. 2022;12(1):8688. https://doi.org/10.1038/s41598-022-12262-w

Article  CAS  PubMed  PubMed Central  Google Scholar 

von Elm E, Altman DG, Egger M, et al. The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) statement: guidelines for reporting observational studies. Journal of Clinical Epidemiology. 2008;61(4):344-9. https://doi.org/10.1016/j.jclinepi.2007.11.008

Article  Google Scholar 

Hays RD, Spritzer KL, Schalet BD, et al. PROMIS((R))-29 v2.0 profile physical and mental health summary scores. Quality of Life Research. 2018;27(7):1885–1891. https://doi.org/10.1007/s11136-018-1842-3

Cella D, Yount S, Rothrock N, et al. The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years. Medical Care. 2007;45(5 Suppl 1):S3-S11. https://doi.org/10.1097/01.mlr.0000258615.42478.55

Article  PubMed  PubMed Central  Google Scholar 

Hays RD, Bjorner JB, Revicki DA, et al. Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items. Quality of Life Research. 2009;18(7):873-80. https://doi.org/10.1007/s11136-009-9496-9

Article  PubMed  PubMed Central  Google Scholar 

Bond FW, Hayes SC, Baer RA, et al. Preliminary psychometric properties of the Acceptance and Action Questionnaire-II: a revised measure of psychological inflexibility and experiential avoidance. Behavior Therapy. 2011;42(4):676-88. https://doi.org/10.1016/j.beth.2011.03.007

Article  PubMed  Google Scholar 

Carver CS. You want to measure coping but your protocol's too long: consider the brief COPE. International Journal of Behavioral Medicine. 1997;4(1):92-100. https://doi.org/10.1207/s15327558ijbm0401_6

Article  CAS  PubMed  Google Scholar 

Eisenberg SA, Shen BJ, Schwarz ER, et al. Avoidant coping moderates the association between anxiety and patient-rated physical functioning in heart failure patients. Journal of Behavioral Medicine. 2012;35(3):253-61. https://doi.org/10.1007/s10865-011-9358-0

Article  PubMed  Google Scholar 

Harris H, Horst SJ. A Brief Guide to Decisions at Each Step of the Propensity Score Matching Process. Practical Assessment, Research, and Evaluation. 2016;21(1). https://doi.org/10.7275/yq7r-4820

Costi C, Hollingsworth B, O'Sullivan V, et al. Does caring for others affect our mental health? Evidence from the COVID-19 pandemic. Social Science & Medicine. 2023;321:115721. https://doi.org/10.1016/j.socscimed.2023.115721

Article  Google Scholar 

Kisch J, Leino EV, Silverman MM. Aspects of suicidal behavior, depression, and treatment in college students: results from the spring 2000 national college health assessment survey. Suicide and Life-Threateaning Behavior. 2005;35(1):3-13. https://doi.org/10.1521/suli.35.1.3.59263

Article  Google Scholar 

Liu Y, Zhang N, Bao G, et al. Predictors of depressive symptoms in college students: A systematic review and meta-analysis of cohort studies. Journal of Affective Disorders. 2019;244:196-208. https://doi.org/10.1016/j.jad.2018.10.084

Article  CAS  PubMed  Google Scholar 

Liu XQ, Guo YX, Zhang WJ, et al. Influencing factors, prediction and prevention of depression in college students: A literature review. World Journal of Psychiatry. 2022;12(7):860-873. https://doi.org/10.5498/wjp.v12.i7.860

Article  CAS  PubMed  PubMed Central  Google Scholar 

Mak HW, Bu F, Fancourt D. Mental health and wellbeing among people with informal caring responsibilities across different time points during the COVID-19 pandemic: a population-based propensity score matching analysis. Perspectives in Public Health. 2023;143(5):275-284. https://doi.org/10.1177/17579139221104973

Article  PubMed  Google Scholar 

Taniguchi Y, Miyawaki A, Tsugawa Y, et al. Family caregiving and changes in mental health status in Japan during the COVID-19 pandemic. Archives of Gerontology and Geriatrics. 2022;98:104531. https://doi.org/10.1016/j.archger.2021.104531

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