United States Renal Data System 2022 USRDS annual data report: epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, (2022).

World Federation of Mental Health (WFMH). Caring for the Caregiver. 2013 Woodbridge, USA World Federation of Mental Health.

Chou, K.-R. Caregiver burden: a concept analysis. J. Pediatr. Nurs. 15, 398–407 (2000).

Article  CAS  PubMed  Google Scholar 

Anandi, B. S. & Dhadave, M. M. Anxiety and depression among caregivers of inpatients suffering from chronic debilitating and terminal illnesses. Int. J. Community Med. Public Health 5, 1903–1908 (2018).

Article  Google Scholar 

Bauer, A., Blanchette, E., Taylor Zimmerman, C. & Wightman, A. Caregiver burden in pediatric dialysis: application of the Paediatric Renal Caregiver Burden Scale. Pediatr. Nephrol. 36, 3945–3951 (2021).

Article  PubMed  Google Scholar 

Karopadi, A. N., Mason, G., Rettore, E. & Ronco, C. Cost of peritoneal dialysis and haemodialysis across the world. Nephrol. Dial. Transplant. ume 28, 2553–2569 (2013). October.

Article  Google Scholar 

Wightman, A. et al. Caregiver experience in pediatric dialysis. Pediatrics 143, e20182102 (2019).

Article  PubMed  Google Scholar 

Raina, R., Sethi, S., Aitharaju, V., Vadhera, A. & Haq, I. Epidemiology data on the cost and outcomes associated with pediatric acute kidney injury. Pediatr. Res. 94, 1385–1391 (2023).

Article  PubMed  Google Scholar 

Bjornstad, E. C. et al. Racial and health insurance disparities in pediatric acute kidney injury in the USA. Pediatr. Nephrol. 35, 1085–1096 (2020).

Article  PubMed  PubMed Central  Google Scholar 

Sharma, R. et al. Distress, anxiety, and its correlates among caregivers of children with kidney diseases during COVID-19 pandemic lockdown. Arch. Pédiatr. 29, 243–248 (2022).

Article  PubMed  PubMed Central  Google Scholar 

Chu, S. Y. et al. Interventions to reduce caregiver burden among caregivers of chronic kidney disease (CKD) patients: a scoping review. SAGE Open, 13 https://doi.org/10.1177/21582440231178703 (2023).

Pascoe, M. C., Thompson, D. R., Castle, D. J., McEvedy, S. M. & Ski, C. F. Psychosocial Interventions for Depressive and Anxiety Symptoms in Individuals with Chronic Kidney Disease: Systematic Review and Meta-Analysis. Front Psychol. 8, 992 (2017).

Article  PubMed  PubMed Central  Google Scholar 

Utens, E. M. W. J., Callus, E., Levert, E. M., De Groote, K. & Casey, F. Multidisciplinary family-centred psychosocial care for patients with CHD: consensus recommendations from the AEPC Psychosocial Working Group. Cardiol. Young. 28, 192–198 (2018).

Article  PubMed  Google Scholar 

Ghane, G., Farahani, M. A., Seyedfatemi, N. & Haghani, H. The effect of supportive educative program on the quality of life in family caregivers of hemodialysis patients. J. Educ. Health Promot. 6, 80 (2017).

Article  PubMed  PubMed Central  Google Scholar 

Tornay, E. Educational information for patients and caregivers in paediatric kidney transplant. J. Ren. Care. 33, 115–118 (2007).

Article  CAS  PubMed  Google Scholar